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EJ Scott
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In March 2003 EJ was diagnosed with this disease along with his younger brother. He also learned that his sister, mother and aunt are carriers of the disease as well. His grandfather (on his mother's side) went completely blind in his 40's and his baby nephew who is 4 years old was diagnosed 3 years ago. His sister had another son November 08 and there's a chance that the baby also has CHM.
EJ is sharing his story and experiences to help spread the word - CHOROIDEREMIA. The more attention we can bring to the disease, will help research and public awareness.
Imagine seeing life through a straw. As the disease progresses it erodes the peripheral vision, soon EJ and member's of EJ's family will be seeing life through a drink string straw then eventually that small tunnel of vision will close into blackness. YOU, can help stop the progression and save the sight EJ has now. You can ensure his 5 year old nephew Liam is able to drive when he becomes of age.
You can help the future Scott's not yet born, and many like their family, be cured from this disease right in the womb. Please, donate now.
Link: http://www.choroideremia.org/
Many children are effected by CHM.
Save The Children’s Eyesight was founded by the Scott Family who have three children affected by the disease. There are over 3.5 million children that are blind in the world and it is estimated that 1,370 children go blind everyday.
"Support EJ Scott - Dropping Calories for a Cure!"
If you would like to sponsor EJ for his weight loss, we will add you to the list below. You can donate bow or when EJ reaches his goal of 60lb.
On behalf of Bill's Wiki'd Women and EJ, we thank you for your support.
DONATE HERE: For EJ
Please feel free to post your comments in the thread below.
EJ's Blog: http://chmweightloss.blogspot.com/
Choroideremia (CHM) is a rare inherited disorder that progressive causes loss of vision due to degeneration of the choroid and retina. It almost exclusively occurs in males.
In March 2003 EJ was diagnosed with this disease along with his younger brother. He also learned that his sister, mother and aunt are carriers of the disease as well. His grandfather (on his mother's side) went completely blind in his 40's and his baby nephew who is 4 years old was diagnosed 3 years ago. His sister had another son November 08 and there's a chance that the baby also has CHM.
EJ is sharing his story and experiences to help spread the word - CHOROIDEREMIA. The more attention we can bring to the disease, will help research and public awareness.
Imagine seeing life through a straw. As the disease progresses it erodes the peripheral vision, soon EJ and member's of EJ's family will be seeing life through a drink string straw then eventually that small tunnel of vision will close into blackness. YOU, can help stop the progression and save the sight EJ has now. You can ensure his 5 year old nephew Liam is able to drive when he becomes of age.
You can help the future Scott's not yet born, and many like their family, be cured from this disease right in the womb. Please, donate now.
Link: http://www.choroideremia.org/
Many children are effected by CHM.
Save The Children’s Eyesight was founded by the Scott Family who have three children affected by the disease. There are over 3.5 million children that are blind in the world and it is estimated that 1,370 children go blind everyday.
"Support EJ Scott - Dropping Calories for a Cure!"
If you would like to sponsor EJ for his weight loss, we will add you to the list below. You can donate bow or when EJ reaches his goal of 60lb.
On behalf of Bill's Wiki'd Women and EJ, we thank you for your support.
DONATE HERE: For EJ
Please feel free to post your comments in the thread below.
EJ's Blog: http://chmweightloss.blogspot.com/
| Bill's Wiki'd Women Donations EJ's Progress and Sponsors
July 1st - 266.8lbs July 8th - 260.8lbs July 15th -258.2 lbs Aug 1sth - 251.4lbs Aug 19th - 245.2lbs Aug 26th - 244.4lbs Sep 2nd - 240.6lbs Sep 14th - 236.2lbs Nov 6th - 222.8lbs Dec 30th - 211.1lbs 2010 Jan 12th - 206.8lbs |
Tincar |
Latest page update: made by Tincar
, Jan 14 2010, 4:18 PM EST
(about this update
About This Update
Edited by Tincar
6 words added view changes - complete history) |
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Keyword tags:
Charity
choroideremia
CRF
Deborah Ann Woll
Jessica
More Info: links to this page
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| Started By | Thread Subject | Replies | Last Post | ||
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| lmhw24 | @tincar... | 2 | Jul 12 2010, 11:28 AM EDT by lmhw24 | ||
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Thread started: Jul 11 2010, 8:26 AM EDT
Watch
Just wanted to let you know that "Down with the Sickness" is by Disturbed. Not, distubia...just a CYA or FYI ;) Lots of luck for the donations and prayers and thoughts out to E.J. and his family and friends in this difficult time.
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Keyword tags:
Charity
choroideremia
CRF
Deborah Ann Woll
Jessica
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| Tincar | EJ Scott | 17 | May 14 2010, 3:12 PM EDT by TheGhostofAngelicaF | ||
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Thread started: Jul 13 2009, 3:58 PM EDT
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Hi everyone! Welcome to EJ’s page. Here you can post your comments to EJ, diet tips or just words of encouragement. Don’t forget to check out our donation page and see how we are doing and how you can help.
http://billswikidwomen.wetpaint.com/page/EJ+Scott EJ we are all thinking of you! Hang in there. Losing weight is very hard. I was doing really well myself on the treadmill for awhile. I am a BIG “dead movie” fan and I would listen to “Get down with the sickness” by disturbia and pretend that I was running from the living dead like in the remake of “Dawn of the Dead”. Then Stephen Moyer came along as Bill and now I WANT the dead to catch me. Now I need a new plan ;) |
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